Blog Layout
Breaking News...... Zolgensma NHSE announcement
The Annabelle Rose Foundation • 11 March 2021
The 8th of March Was a historic day!
We are so happy to announce that NHSE and Novartis Gene have reached an agreement which will enable families in England to have access to gene therapy for Spinal Muscular Atrophy - one of the most expensive treatments in England on the NHS.
This was our first sitting on a panel when approving a drug along with two other SMA Charities, stakeholders and professionals.
Like Spinraza there will be stipulations as to who can receive it. Please read further by clicking here
A magical ball celebrating our 14th year!
As it stands - Belles Ball is now sold out. We have started a reservation list for those that want tickets if any become available.
Did you know that you can now support us by sending e-cards instead of greeting cards?
We regret to inform you that Jingle Belle Bop has been cancelled.
Want to help us at no extra cost to you?!
Prime members who shop Amazon Prime Day deals from 21st – 22nd June can do more than discover great deals: Simply shop at https://lnkd.in/g8JJPvT or with AmazonSmile ON in the Amazon Shopping app, and AmazonSmile will DOUBLE donations to The Annabelle Rose Foundation For Spinal Muscular Atrophy!!! ! #amazon #amazonsmile #primeday2021 #primeday #arf4sma #youshopamazongives
Deposits/ ticket money for Belles Ball is due. If you choose to pay a deposit now for tickets they need paying for by the end of July in full. Please contact us (Below) for payment details.
As it stands - Belles Ball is now sold out. We have started a reservation list for those that want tickets if any come available.
Welcome to our new look website we think its pretty, please have a look around.
If there's something not quite right do let us knowvand we'll fix it! .. We could sack our web wizard , but he's a volunteer............. so we are stuck with him!