What we do
What we do
What we do
The Annabelle Rose Foundation aim to support sufferers of sma and their families however we can, in line with our objectives: e.g. funding for car/home adaptations, funding specialist medical equipment and toys, providing families with the opportunity of short holidays for those with a short prognosis (as we know first-hand the value of such things) and provide help support with funeral costs/arrangements, as well as providing emotional support for the families affected by the condition & donating to fund research.
The Annabelle Rose Foundation aim to support sufferers of sma and their families however we can, in line with our objectives:
e.g. funding for car/home adaptations, funding specialist medical equipment and toys, providing families with the opportunity of short holidays for those with a short prognosis (as we know first-hand the value of such things) and provide help support with funeral costs/arrangements, as well as providing emotional support for the families affected by the condition & donating to fund research.
What is SMA?
What is SMA?
Spinal Muscular Atrophy (SMA) is a genetic disorder that affects nerve cells so that muscles can't be used and become wasted, or atrophied. Read more here
Treatment
Treatment
Until recently spinal muscular atrophy had No Cure, and No treatment in the UK.
There is Now an effective treatment to SMA,
Community
Community
Community is the family that goes beyond family. It is the people and places that we come in contact with each and every day.
When we strengthen communities, we strengthen individuals. SMA has one of the strongest communities found out more about them here.